{"id":5574,"date":"2018-03-20T00:00:00","date_gmt":"2018-03-19T13:00:00","guid":{"rendered":"https:\/\/herheart.org\/2018\/03\/20\/scad-heart-attack-thats-striking-young-women\/"},"modified":"2018-03-20T00:00:00","modified_gmt":"2018-03-19T13:00:00","slug":"scad-heart-attack-thats-striking-young-women","status":"publish","type":"post","link":"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/","title":{"rendered":"SCAD: The Heart Attack That&#8217;s Striking Young Women"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><p>[vc_row row_type=&#8221;row&#8221; use_row_as_full_screen_section=&#8221;no&#8221; type=&#8221;full_width&#8221; angled_section=&#8221;no&#8221; text_align=&#8221;left&#8221; background_image_as_pattern=&#8221;without_pattern&#8221; css_animation=&#8221;&#8221;][vc_column][vc_column_text]<em>By Jennifer Clopton<\/em>[\/vc_column_text][vc_empty_space height=&#8221;10px&#8221;][vc_column_text]<img loading=\"lazy\" decoding=\"async\" class=\"alignright wp-image-21553 \" src=\"https:\/\/herheart.org\/web\/wp-content\/uploads\/2017\/01\/650x350_cardiac_arrest_slideshow-300x162.jpg\" alt=\"\" width=\"365\" height=\"197\" \/><\/p>\n<p>Christine Shockey suspected she was having a heart attack when she awoke at 2 a.m. with excruciating pain shooting down her left arm.<\/p>\n<p>But it took medical professionals 5 days to figure it out &#8212; a delay that changed her health forever.<\/p>\n<p>Shockey went to the ER to have her pain checked out and told the doctors that 8 days earlier, her 43-year-old sister had a type of heart attack called spontaneous coronary artery dissection, or SCAD.<\/p>\n<p>The mother of two living in Council Bluffs, IA, was 42 at the time, a runner with no known health or heart problems.<\/p>\n<p>Doctors did an electrocardiogram (EKG) on Shockey, and the results came back slightly abnormal. A blood test also found some proteins called troponins in her blood that are released when heart muscle is damaged during a heart attack.<\/p>\n<p>Despite this, she says doctors diagnosed her with gastric reflux and anxiety. While they kept her for 2 days, they refused repeated requests by her family to do an angiogram to get a better look at her heart.<\/p>\n<div class=\"article-page active-page\" data-page=\"1\">\n<section>\n<div id=\"attachment_21552\" style=\"width: 310px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-21552\" class=\"size-medium wp-image-21552\" src=\"https:\/\/herheart.org\/web\/wp-content\/uploads\/2017\/01\/650x350_scad-300x162.jpg\" alt=\"\" width=\"300\" height=\"162\" \/><p id=\"caption-attachment-21552\" class=\"wp-caption-text\">A SCAD heart attack starts with a tear in the wall of an otherwise normal artery.<\/p><\/div>\n<p>She was still having arm pain when she was released, so Shockey went to her primary care doctor. He diagnosed her with shingles &#8212; even though she didn\u2019t have a rash.<\/p>\n<p>With the pain still not going away, Shockey was able to get an appointment with a doctor the next day at the University of Nebraska Medical Center at Omaha, just across the Missouri River from Council Bluffs. When he did an EKG, he immediately announced she was having a heart attack and said she\u2019d been having it for the last 5 days &#8212; since her symptoms started.<\/p>\n<p>He handed her his personal cellphone before rushing her into surgery. \u201cHe told me to call my husband and tell him goodbye because he wasn\u2019t sure he could save me,\u201d Shockey says.<\/p>\n<p>Her heart was damaged so much, it couldn&#8217;t pump the way it should. The main artery to her heart was torn from the top of her heart to the bottom. Although doctors restored blood flow to it by using a stent, her heart never fully recovered.<\/p>\n<p>That was in 2015. Two-and-a-half years later, she is back to work and a fairly normal life, although she still has unexplained chest pain, takes heart medication, and must avoid vigorous activities that could put too much pressure on her heart.<\/p>\n<p>\u201cI have had to make some peace with the experience, but certainly I am angry because I think in my mind, I was simply too young, too fit, and too female for all of those doctors to recognize what was happening to me,\u201d Shockey says. \u201cThere is no way that if I was a man and I had come in with those symptoms that I would have been turned away and told you just have anxiety. I think if I was a man, I would have been taken seriously.\u201d<\/p>\n<\/section>\n<\/div>\n<p>&nbsp;<\/p>\n<h3><strong>What is SCAD?<\/strong><\/h3>\n<p>Unlike a more typical heart attack caused by a buildup of plaque in the arteries, a SCAD heart attack starts with a tear in an artery. The tear blocks the artery and blood flow to the heart, leading to a heart attack. (See this <a href=\"https:\/\/herheart.org\/heart-conditions\/scad\/\" target=\"_blank\" rel=\"noopener noreferrer\">animation<\/a> from the Mayo Clinic.)<\/p>\n<p>Although SCAD causes a small percentage of heart attacks overall, it\u2019s responsible for 40% of heart attacks in women under the age of 50. And it\u2019s mostly happening to young women &#8212; more than 90% of SCAD patients are female.<\/p>\n<p>\u201cThis is an important cause of heart attacks among younger people, and it has really only been in the past 4 or 5 years that our thinking on it has changed. For the past 100 years, we had been missing it,\u201d says Sharonne N. Hayes, MD, of the Mayo Clinic in Minnesota &#8212; a renowned SCAD researcher.<\/p>\n<p>Many researchers have been rushing to learn more about SCAD and are starting to better understand how it works and how to treat it. The American Heart Association released the first scientific statement about the condition in February. The 35-page document reviews relevant research and says, among other things, that conservative treatment is generally best. There isn\u2019t yet enough high-quality evidence on the condition to write guidelines for treatment.<\/p>\n<p>Still, Hayes says the statement is badly needed to make people aware of it and improve diagnosis rates. SCAD patients are generally healthy and don\u2019t have or do the usual things that can lead to heart attacks &#8212; like smoking, diabetes, or being overweight &#8212; so SCAD is often misdiagnosed and may lead to treatment that can cause more artery damage.\u201cSCAD is happening to a group of women who appear healthy, are thin, and have no risk factors. So even though they have classic heart attack symptoms, they are often being misdiagnosed,\u201d Hayes says. She says like Shockey, many SCAD patients are sent home from hospitals in the middle of a heart attack that isn\u2019t discovered for days.<\/p>\n<p>Heart attacks are typically diagnosed with bloodwork and an electrocardiogram (a test showing the heart\u2019s electrical activity with lines on paper), but SCAD can only be diagnosed with an angiogram (an X-ray test using special dye and a camera to take pictures of blood flow in the coronary arteries).<\/p>\n<p>Symptoms include:<\/p>\n<ul>\n<li>Chest pain or discomfort<\/li>\n<li>Shortness of breath<\/li>\n<li>Pain in the arms, back, neck, or jaw<\/li>\n<li>Nausea, lightheadedness, and sweating<\/li>\n<\/ul>\n<p>Ellen Robin was 53 when it happened to her. \u201cIt felt like an elephant sat on my chest,\u201d she recalls. \u201cI wobbled and grabbed onto a folding chair because it almost knocked me off my feet. I felt dizzy, both arms were going numb and I thought, &#8216;What the heck is this?&#8217; \u201d<\/p>\n<p>&nbsp;<\/p>\n<h3 id=\"3-5\">Who&#8217;s Likely to Have SCAD?<\/h3>\n<p>While SCAD patients range from their teens to their 80s, the average patient is 42 years old.<\/p>\n<p>Ten to 15 percent of cases happen around childbirth. Researchers haven\u2019t been able to pinpoint a specific gender or hormonal explanation, but they know the physical strain of childbirth isn\u2019t the main cause, since SCAD happens with both planned C-sections and unplanned vaginal deliveries.<\/p>\n<p>It does appear to be associated with other artery problems, most commonly fibromuscular dysplasia (FMD). This disease causes cells to grow abnormally in artery walls and is seen in at least half of SCAD patients.<\/p>\n<p>Heather Gornik, MD, a cardiologist and vascular medicine specialist at the Cleveland Clinic, says patients often don\u2019t know they even have the disease until doctors look for artery defects after a heart attack. \u201cSo it is now recommended that all patients with SCAD be checked for FMD and other artery problems such as brain aneurysms or blockages or dissections or tears in other vessels,\u201d she explains.<\/p>\n<p>SCAD can also run in families, although Hayes says researchers haven\u2019t cracked the genetic connection. Her research team is collecting DNA samples from patients and sometimes sees the condition among mothers, daughters, aunts, nieces, and sisters.<\/p>\n<p>But in many patients, like Meghan Scheiber, the cause remains uncertain.<\/p>\n<p>\u201cUnfortunately there are a lot of us like that,\u201d Scheiber says. \u201cYou don\u2019t know why it happened, so there is a fear of the unknown.\u201d<\/p>\n<p>Scheiber was 33, in the middle of a stressful week &#8212; at work and with a sick child &#8212; when she felt like she would pass out and had a heavy feeling in her chest and arms. She figured it was\u00a0an anxiety attack or the flu, so she finished her workday and drove home.<\/p>\n<p>But when the feeling came back the next day, she went to the ER. By the time she got there, she was in the middle of a heart attack. She was admitted to the ICU, had a second heart attack 2 days later, and was diagnosed with\u00a0spontaneous coronary artery dissection, or SCAD.<\/p>\n<p>\u201cI asked my doctor if I would die,\u201d she recalls tearfully, \u201cand he said he didn\u2019t know what would happen.\u201d<\/p>\n<p>Doctors don\u2019t know how to prevent SCAD, either, and say custom advice is often needed. SCAD tends to happen again, so to avoid stress on the heart, patients are generally put on a daily aspirin and asked to avoid getting pregnant and taking hormone therapy. They are also told to avoid high-impact and high-intensity sports and heavy lifting that causes strain &#8212; things like bodybuilding or shoveling snow.<\/p>\n<p>Scheiber\u2019s two attacks damaged the bottom of her heart, but 7 years later, she is symptom-free and hasn\u2019t had another attack. She exercises regularly, eats well for general heart health, and she says as a result, she is in better shape at age 41 than she was a decade ago. \u201cMy plan is to be 41 and fabulous,\u201d she says.<\/p>\n<p>&nbsp;<\/p>\n<h3><strong>Latest SCAD Research<\/strong><\/h3>\n<div id=\"attachment_20248\" style=\"width: 447px\" class=\"wp-caption alignright\"><a href=\"https:\/\/herheart.org\/web\/wp-content\/uploads\/2017\/10\/heart_health_infographic.png\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-20248\" class=\"wp-image-20248 size-large\" src=\"https:\/\/herheart.org\/web\/wp-content\/uploads\/2017\/10\/heart_health_infographic-437x1024.png\" alt=\"\" width=\"437\" height=\"1024\" \/><\/a><p id=\"caption-attachment-20248\" class=\"wp-caption-text\">Credit: Web MD. Click to enlarge.<\/p><\/div>\n<p>As recently as 2009, Hayes thought SCAD was too rare to study. But then she met a patient who told her an online SCAD community had grown to 70 female participants. Hayes connected with them and started a pilot study that has since enrolled more than 700 women and men into a SCAD registry. That\u2019s led to several discoveries about this condition. They include:<\/p>\n<p><strong>Survival rates are much better than originally thought.<\/strong> Doctors used to view SCAD as often fatal. But the death rate is actually very low, ranging between 1% and 5%. Outcomes are better than for people with regular heart attacks. But chances for a repeat SCAD attack are greater, happening in more than 20% of cases.<\/p>\n<p><strong>Standard heart attack treatment isn&#8217;t best.<\/strong> Regular heart attack patients often receive stents implanted to open their blocked arteries. But stents can make things worse for SCAD patients, since they have tears in arteries.<\/p>\n<p>\u201cWith SCAD, the artery that\u2019s dissected or torn is very fragile and procedures can extend the tear,\u201d Gornik says.<\/p>\n<p>Doctors often treat SCAD patients with a combination of aspirin and an anti-platelet medication, watch them closely for early complications, and have them do rehab. Patients are given emotional support and education about heart health and exercise. Most patients get better in a matter of weeks, although depending on how quickly they were diagnosed, there may be lingering heart damage.<\/p>\n<p><strong>There are triggers.<\/strong> Patients often report extreme emotional or physical stress in the days before a SCAD, like a death in the family, breakdown in marriage, job stress, or intense physical exercise &#8212; even lifting heavy items.<\/p>\n<p>&nbsp;<\/p>\n<h3><strong>Helping SCAD Patients<\/strong><\/h3>\n<p>Hayes says the best advice for women is to call 911 if they think they are having a heart attack. Young women who don\u2019t have the things that usually lead to a heart attack and are having trouble getting a diagnosis should ask about SCAD.<\/p>\n<p>A study published this month stresses that providers and registered nurses in emergency rooms and labor and delivery units need to be aware of SCAD signs, symptoms, and the things that lead to it so they recognize the condition when they see it in patients &#8212; particularly those dealing with pregnancy-related SCAD.<\/p>\n<p>Rachel M. Bond, MD, associate director of women\u2019s heart health at Lenox Hill Hospital in New York City, has co-authored a recent study and editorial calling for more awareness of the condition as well, writing that in 2018, it is still \u201cunderstudied, underdiagnosed, and undertreated in women.\u201d<\/p>\n<p>\u201cI do feel there is an age and gender bias. So I really stress to women that if something doesn\u2019t feel right to you, you need to be an advocate for yourself and don\u2019t leave the ER until you feel assured everything is checked out,\u201d she says.<\/p>\n<p>Shockey agrees but says based on her personal experience, even aggressive self-advocacy doesn\u2019t always get you prompt attention because so many doctors aren\u2019t aware of the condition. She says the cardiologist who finally diagnosed her properly said she was the first SCAD patient he had seen in his 30-year career.<\/p>\n<p>\u201cIf there was anybody that advocated, it was me and my family. We did not stop until we got the help we needed, but we had to fight and fight and fight for that,\u201d she says.<\/p>\n<p>There are now very active online support groups pushing SCAD research and helping survivors connect. Robin is an administrator of a private Facebook group called SCAD Survivors that has grown to almost 2,500 members in 5 years. Nearly a thousand new members joined in the last year alone. \u201cEvery day, I add another one or two survivors to our group. We just keep growing,\u201d she says.<\/p>\n<p>Shockey is hopeful that education and awareness about the condition will continue to grow. Doctors never discovered the cause of her SCAD. While she is so grateful to have survived, she also admits she&#8217;s disappointed to be told that if she had been treated earlier, she could have fully recovered like her sister without any permanent heart damage.\u201cI feel very, very lucky to be alive, and I feel there must have been a reason why I survived. Maybe it is because I have the opportunity to talk about this,\u201d Shockey says. \u201cDoctors need to have more of an open mind with regard to what a person suffering from a heart attack looks like, so when a 30- or 40-year-old woman like me walks in, they don\u2019t instantly dismiss that.\u201d<\/p>\n<p><em>(This article was originally published in <a href=\"https:\/\/www.webmd.com\/heart-disease\/news\/20180319\/scad-heart-attack-strikes-young-women\">Web MD<\/a> on March 19, 2018.)<\/em>[\/vc_column_text][vc_empty_space height=&#8221;20px&#8221;][vc_column_text]&lt;&lt; <a href=\"https:\/\/herheart.org\/risk\/signs-and-symptoms-of-heart-attack\/scad\/\">Back to Spontaneous Coronary Artery Dissection (SCAD)<\/a>[\/vc_column_text][vc_empty_space][\/vc_column][\/vc_row]<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>By Jennifer Clopton. Christine Shockey suspected she was having a heart attack when she awoke at 2 a.m. with excruciating pain shooting down her left arm.<\/p>\n<p>But it took medical professionals 5 days to figure it out &#8212; a delay that changed her health forever.<\/p>\n<p>Shockey went to the ER to have her pain checked out and told the doctors that 8 days earlier, her 43-year-old sister had a type of heart attack called spontaneous coronary artery dissection, or SCAD.<\/p>\n<p>The mother of two living in Council Bluffs, IA, was 42 at the time, a runner with no known health or heart problems.<\/p>\n","protected":false},"author":1,"featured_media":5575,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"content-type":"","pmpro_default_level":0,"footnotes":""},"categories":[12],"tags":[145],"class_list":["post-5574","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-conditions","tag-scad","pmpro-has-access","grve-entry-item","grve-blog-item"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>SCAD: The Heart Attack That&#039;s Striking Young Women | Her Heart<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"SCAD: The Heart Attack That&#039;s Striking Young Women | Her Heart\" \/>\n<meta property=\"og:description\" content=\"By Jennifer Clopton. Christine Shockey suspected she was having a heart attack when she awoke at 2 a.m. with excruciating pain shooting down her left arm. But it took medical professionals 5 days to figure it out -- a delay that changed her health forever. Shockey went to the ER to have her pain checked out and told the doctors that 8 days earlier, her 43-year-old sister had a type of heart attack called spontaneous coronary artery dissection, or SCAD. The mother of two living in Council Bluffs, IA, was 42 at the time, a runner with no known health or heart problems.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/\" \/>\n<meta property=\"og:site_name\" content=\"Her Heart\" \/>\n<meta property=\"article:published_time\" content=\"2018-03-19T13:00:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/area54.thedct.net\/herheart\/wp-content\/uploads\/2019\/06\/650x350_cardiac_arrest_slideshow.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"650\" \/>\n\t<meta property=\"og:image:height\" content=\"350\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"hhhero\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"hhhero\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"12 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/\",\"url\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/\",\"name\":\"SCAD: The Heart Attack That's Striking Young Women | Her Heart\",\"isPartOf\":{\"@id\":\"https:\/\/area54.thedct.net\/herheart\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/area54.thedct.net\/herheart\/wp-content\/uploads\/2019\/06\/650x350_cardiac_arrest_slideshow.jpg\",\"datePublished\":\"2018-03-19T13:00:00+00:00\",\"author\":{\"@id\":\"https:\/\/area54.thedct.net\/herheart\/#\/schema\/person\/e6eb00afb3dd078f0cc1df74ebcdd2ee\"},\"breadcrumb\":{\"@id\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/#primaryimage\",\"url\":\"https:\/\/area54.thedct.net\/herheart\/wp-content\/uploads\/2019\/06\/650x350_cardiac_arrest_slideshow.jpg\",\"contentUrl\":\"https:\/\/area54.thedct.net\/herheart\/wp-content\/uploads\/2019\/06\/650x350_cardiac_arrest_slideshow.jpg\",\"width\":650,\"height\":350},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/area54.thedct.net\/herheart\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"SCAD: The Heart Attack That&#8217;s Striking Young Women\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/area54.thedct.net\/herheart\/#website\",\"url\":\"https:\/\/area54.thedct.net\/herheart\/\",\"name\":\"Her Heart Ltd\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/area54.thedct.net\/herheart\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"},{\"@type\":\"Person\",\"@id\":\"https:\/\/area54.thedct.net\/herheart\/#\/schema\/person\/e6eb00afb3dd078f0cc1df74ebcdd2ee\",\"name\":\"hhhero\",\"sameAs\":[\"https:\/\/area54.thedct.net\/herheart\"],\"url\":\"https:\/\/area54.thedct.net\/herheart\/author\/hhhero\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"SCAD: The Heart Attack That's Striking Young Women | Her Heart","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/area54.thedct.net\/herheart\/scad-heart-attack-thats-striking-young-women\/","og_locale":"en_US","og_type":"article","og_title":"SCAD: The Heart Attack That's Striking Young Women | Her Heart","og_description":"By Jennifer Clopton. Christine Shockey suspected she was having a heart attack when she awoke at 2 a.m. with excruciating pain shooting down her left arm. But it took medical professionals 5 days to figure it out -- a delay that changed her health forever. Shockey went to the ER to have her pain checked out and told the doctors that 8 days earlier, her 43-year-old sister had a type of heart attack called spontaneous coronary artery dissection, or SCAD. 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